In my first year of my doctoral program I was fortunate to meet a colleague who had as much online/social media experience as me – few of my fellow social work colleagues and faculty in our school used (even now) online social media much beyond LinkedIn for professional contacts and maybe Facebook for personal connections – forget about blogging, Tumblr, Twitter or the like.
When I began graduate school my department did not use social media sites to promote and market their activities and programs. I asked if I could create and maintain a Twitter site for the Center and now I share Twitter duties with other graduate students. I enjoy working with others in the Center to think about how to effectively use social media to promote the Center’s activities.
One of the things I make sure to emphasize when I talk about using Twitter or other social media (our Center also has a Facebook page and a blog) is the reciprocal nature of social media. A lot of professionals use Twitter and Facebook in a one-way direction to share their organization’s (or professional) activities/news/etc. But I often remind others who are starting to use Twitter professionally that it’s not just about a mass news blast to the “Twitterverse” but that social media done best is done relationally. That means paying attention to who else is out there that is similar to you or your organization and “following” or “liking” their social media page. It means thanking new followers on Twitter for following you. It means when someone you follow or like posts, a news story link or message that you “re-tweet” or “share” rather than posting it as your own. It means commenting on other blogs and linking other blogs on your blog as well. It means making connections between fellow online relationships that you think would benefit from knowing each other.To me this is what social work is all about!
Anyone who knows me knows that one of my mantras in almost all social work (and beyond) situations is parallel processing. So in the same ways that we social workers tend to think about social media as a client (practice) issue, I want to encourage our profession to see it as a professional and organizational issue as well, beyond the issue of just client concerns (i.e. clients engaging in problematic behaviors on social media sites) which is where most of the emphasis on social media is currently situated.
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Last week I finished reading The Immortal Life of Henrietta Lacks by Rebecca Skloot. I first heard about the book when I saw Skloot on the Colbert Report and what intrigued me most was not the science behind the story but that the cells that had gone on to impact medical science in such immeasurable ways had been taken without Lack’s knowledge and the development of ethical standards for conducting research.
Without giving away too much of the story (although most of it is now widely known) here are my thoughts. For the most part, the story is told in a compelling way, starting with the author’s imagined scenario of Henrietta’s visit to Johns Hopkins to have a”knot” checked out. Skloot tells the story of Henrietta and the impact of her cells on medical science while alternating between her history, her children’s stories, and those who played a key role in how her cells were used in medical research.
Several pages into the section of the story where author Skloot delves into Lacks’ history, I began to feel uncomfortable. Skloot discusses her methodology for creating imagined scenes based on interviews with those who knew Henrietta and extensive research but I was still uneasy about how Lacks was characterized. While I imagine that Skloot was attempting to bring Henrietta out of the shadows, so to speak, and humanize the person whose cells had been unacknowledged for so long, it seemed contrived and – exactly what Skloot didn’t want to do – exploitative.
To me, the real gem of this book is that Skloot makes public the way research involving humans has often been unethical. I took a fascinating course about moral and ethical dilemmas in family decision making a few years ago, and many of the issues Skloot brings to the surface in her book we discussed in this class; questions about who owns human tissue once it’s no longer attached to the person? When does an individual’s concerns about biomedical ethics supersede the greater good for all? Should important decisions be made by others if a person is deemed not competent or knowledgeable enough to make that decision when it comes to their health and medical procedures?Continue Reading →
– otherwise known as the post in which I ruminate on the “other” and whether inclusion or exclusion is the answer.**
We (those of us who fit in to a dominant group) like to tell people who don’t (the other) how they should live. And then we often expect gratitude from them for our generosity in thinking about their “best interests.”
One of the books I’m currently reading is “Developmental Disabilities and Child Welfare.” by Ronald Hughes and Judith Rycus. This book, published in 1998, is a good primer for anyone looking to become more informed about how child welfare professionals need to understand and respond to children in the child welfare system with disabilities. While reading this book earlier today, I was struck by the author’s discussion about the importance of the inclusion of children with disabilities into mainstream settings (here I believe they mostly are referring to educational settings, but could definitely be expanded to all settings in which typically developing children interact).
The authors stress that segregation is a disservice to both individuals with disabilities as well as to society in large, because for the individual it 1) denies the person the opportunity to be part of the same world as anyone else, 2) it sends a message that they inherently can’t participate in the same activities as the rest of society, and 3) singles them out for special treatment rather than treating them as their typically-abled peers.
The disadvantage to society at large is that segregation perpetuates the stereotypes and myths about persons with disabilities, and that society will not recognize the many contributions that are made to society by persons with disabilities . The authors write, “An extension of this myth is that people with disabilities prefer life and activities with ‘their own kind.’ It is true that years of segregation can contribute to feelings of anxiety and fear when a person with a disability is confronted with an integrated environment…This myth is often a rationalization to cover and reinforce our own discomfort in the presence of persons with disabilities” (p.23).Continue Reading →
I’m taking a class this semester called Disability Policy and Services. In last week’s first session we saw the documentary, Willowbrook: The Last Great Disgrace, an expose of the dehumanizing treatment of institutionalized persons with disabilities.
We were asked to write a summary response to the documentary. While the film precipitated the world’s attention to the plight of those who were institutionalized, I couldn’t help feeling really uncomfortable about watching the documentary.
The words I wrote in my notebook immediately after the film include: exploited, victimized, re-victimized, hopeless, helpless, sensationalized.
As much as I understand that Geraldo Rivera’s expose did SO much to bring attention to the disgraceful treatment of those institutionalized at Willowbrook and other institutions, the first thought that ran through my mind as the cameras panned on the naked, dirty residents was whether the film was exploiting these residents once again, for the purpose of journalism. Did they have consent? Could they even have elicited consent? Would I want my family member, naked and dirty and running through an institution be filmed for the whole nation and world to see? I understand that the purpose was to highlight how awful the living conditions (if you can call it that) were, but I felt viscerally that they were still portrayed as inhuman.
I am all for the use of journalism to highlight inequity; I just wish it didn’t also sometimes exploit the very persons they are claiming to respect. One more thought – I guess what I’m asking is, to what extent is it justifiable to exploit the vulnerable? We might say the ends justified the means…but that makes me really uncomfortable…I’d love other people’s thoughts about this.
Below is the trailer for the documentary.